Firefly Fund Run For Rare
Shining a light on NPC
Run For Rare
Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day on February 28. From Feb. 28-March 26, we want to see you running to show your support for NPC.
The Amherst Foundation has pledged to match up to $25,000 during Run for Rare.
On the Run for Rare tab, participants can record their pledges for the number of miles they can accumulate from Feb. 28 to March 26. Participants can pledge for themselves or share the link to gather pledges from family, friends, or colleagues. Proceeds from the event will support Firefly Fund’s three key initiatives: Translational Medical Research, Newborn Screening, and its Patient Access Fund.
Share your photos on social media by using #RunForRare2021 and tag Firefly Fund.
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